10th Annual Walk to Defeat ALS October 21st at Walkway Over the Hudson

HIGHLAND  – The Notre Dame Club of the Mid-Hudson Valley in partnership with the ALS Association Greater New York Chapter will host the 10th Annual Walk to Defeat ALS Fundraiser at the Walkway Over the Hudson on Sunday, October 21st, with registration starting at 9:00 AM on the Highland, New York side of the Walkway. One of the largest charity walks in the Hudson Valley, this event consistently attracts over 2,000 participants and has been referred to as the largest support group held 212 feet above the Hudson.

The Walk is wheelchair and stroller accessible. Before and after the Walk there will be family-friendly activities such as face painting, music, mascots, refreshments, and other fun & games. The first Walk was held on November 15, 2009, just weeks after the Walkway first opened when 55 members of the ND Club of the Mid-Hudson Valley walked and raised just under $5,000. The 2009 Walk was the first charity walk ever held on the Walkway. The Club retains that first application dated October 12, 2009.

After the first walk in 2010, the Notre Dame Club reached out to the community and created a “Hudson Valley ALS Walk Committee”. This committee includes members from IBM, Global Foundries, Marist College and patients with ALS.

As a direct result of the first nine walks, critical services are now available locally to our ALS patients (PALS) and their caregivers. Local services include a patient/nurse coordinator and a social worker who make home and hospital visits, coordinates with Hospice and holds monthly support meetings for PALS and their caregivers. In addition, a local “equipment loan closet” provides medical and augmentative communication equipment at no cost to help maintain the safety, comfort and maximal functioning of PALS. There are also monthly support groups held at a Vassar Brothers Medical Center facility.

Every 90 minutes, someone in the United States is diagnosed with ALS (Lou Gehrig’s disease). ALS occurs throughout the world with no racial, ethnic or socioeconomic boundaries and can affect anyone.
It is estimated that more than 20,000 Americans have the disease at any given time and the average life expectancy is two to five years after diagnosis. There is no known cause, no effective treatment and no cure.

For more information, contact Jillian Saperstein at 212-720-3052 or jsaperstein@als-ny.org or Les McCarthy at les@macdulac.com. To create a walk team or to donate, please go online and visit the Walk to Defeat ALS webpage at: ALSWALKS@ORG.